IDefine is a US-Based Charity organization established in 2020, intent on finding a cure for Kleefstra Syndrome, a rare genetic syndrome with approximately 500 diagnosed cases globally.
Our organization has three areas of focus: establishing a Kleefstra Syndrome Center of Excellence @ Boston Children's Hospital, funding scientific research and development, and building a network for community outreach and support. We have ambitious goals @ IDefine and will not stop until we find a cure!
All proceeds from this fundraising campaign will be routed through our Fiscal Sponsor (Player's Philanthropy Fund) and allocated directly to IDefine in support of defined Kleefstra research projects.
Please visit www.idefine.org for more information about our Charitable Foundation.
Thank you for your support!