Hi, my name is Alycia Patty and I am running the New York Marathon on November 3, 2019 as a proud member of the Huntington's Disease Society of America's team. It is my hope that in running this marathon I will not only raise money for the amazing reasearch that is constantly evolving, but to also raise awareness and shine light on my loved ones who have struggled with and continue to struggle everyday as a result of this disease. I am 29 years old and I am a speech and language pathologist in Gonzales, Louisiana. I married my wonderful husband in 2016. Since meeting him, I have both learned of and personally experienced the debilitating effects of Hungtinton's Disease. He and his family are, without question, the bravest and most lovely people I have ever had the pleasure of knowing. Many of his family members, I have never had the pleasure of knowing, but I know them from their stories. I hear of their bright personalities and the inspiration they sparked in others. Every person in the Clayton family has sparked inspiration in me, which is why I want to give back. As a member of this team I am running for hope, and I am running for a cure. I am also running for the aunts and uncles that I never got to meet, for the family members who did not get to join us at our wedding, for my mother-in law, who never got to meet her second grand-child or dance with her sons at their weddings. For my husband, his brother and cousins who's lives were defined by and forever changed by this debilitating disease. For everyone in our lives who has supported us, loved us, and feared for us in our own journey with HD. I am running this marathon to end this cycle and to find a cure in the name of the people that I love. Please join me in my cause to cure Huntington's Disease and support the people that I love. Let's end the cycle together, forever.
What is the Huntington’s Disease Society of America? The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’sdisease and their families. To learn more, please visit www.hdsa.org.
What is Huntington’s Disease? Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities usually during their prime working years and has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene that causes the disease. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. The symptoms of Huntington’s disease are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.