Hello Everyone!! Thank you for stopping by my page!!
I am fundraising to benefit Huntington’s Disease Society of America in honor of a very special man in my life. Al Stone was not just my step-dad, he was one of my biggest influences in my life. I would not be where I am today in life with out him. Al’s father passed away from HD when I was in my 20’s and we knew through genetic testing shortly after he married my mom , that he would have it also. Sadly, Al passed away this last December, so I am doing this marathon in honor of him. Any amount you can contribute is greatly appreciated.
Huntington's Disease Society of America, Inc. wrote:
Welcome to the 2018 HDSA NYC Marathon Team. Please note that this page is for fundraising purposes only to team members that have already received a marathon spot from HDSA. If you have not yet received a marathon spot from HDSA registering on this page does not guarantee you a spot. If you have questions or concerns about the 2018 HDSA NYC Marathon Team please e-mail Mynelly Perez at firstname.lastname@example.org
What is the Huntington’s Disease Society of America? The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their families. To learn more, please visit www.hdsa.org. What is Huntington’s Disease? Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities usually during their prime working years and has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene that causes the disease. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. The symptoms of Huntington’s disease are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.