HONORING OSCAR - HOPE FOR PVS
When we lost our 8-month-old son, Oscar, we knew we would have to do something to try and make a difference in the world of heart defects. We have fundraised along the way from everything to care packages for inpatient families, heart walks and more but this project means everything to us. This fundraiser can change how PVS is treated and offers hope for those suffering from Pulmonary Vein Stenosis (PVS).
Pulmonary Vein Stenosis (PVS) is a rare condition in which the veins that carry blood from the lungs back to the heart are narrowed. Boston Children’s Hospital has a team specifically dedicated to PVS. Boston is leading the way in PVS research and over the last 20 years has been at the forefront of research making many strides in trying to battle this deadly disease.
Currently, they are working on figuring out what is driving PVS. With the help of the engineers and surgical team, cardiologists and researchers are using computational fluid dynamics to model flow patterns along with patients’ anatomical data to determine a cause of pulmonary vein stenosis. These studies can reveal if the way the vessels are shaped and the way the blood is flowing through them is an underlying cause of pulmonary vein stenosis. If they are successful to find ways to refine blood flow pattern they will be able to reduce the occurrence and prevent PVS.
We NEED your help. Each share, each dollar donated CAN make a difference. Project Heart will match EVERY dollar donated (up to $12,500)! Please consider a tax-deductible contribution! Thank you!