As many of you know, I have been fighting Pulmonary Hypertension for almost 11 years now. The support I have received from friends and family, in this fight, has been overwhelming. I was diagnosed in 2008, after six months of symptoms, and responded well to the treatments I was started on... one of which is an IV medication that runs 24/7 via a pump I’m connected to 24 hours a day. In 2010, I started a fast downhill slide and ended up being approved for a lung transplant. At the same time, I was also “sick enough” to be entered into a drug trial... I chose the drug trial and it fortunately was a game changer and got me functioning better than I had been in years and has kept me off the transplant list. The past year, I have been more exhausted than usual and fighting harder than I have had to for years ... I’m grateful for the drugs that continue to help me to breathe... but need a cure. Constant naps are not acceptable when you have so much you want and need to do. It is also not acceptable that so many people I have met either in person, or online, have died in the primes of their lives. Please help find a cure for this disease that steals quality of life from so many people.