On November 25, 2013 Liz and I were told that she was diagnosed with Multiple System Atrophy (MSA-C), a very rare terminal neurological disease that resembles Parkinson’s with no known cure.
Today Liz is no longer with us, as she peacefully passed away in her home on December 20, 2018.
Unfortunately, MSA progresses rapidly and within 2 or 3 years of symptoms it impairs walking and balance. Most are in wheelchairs by the 4th year and eventually become bedbound. The average person lives about 6 to 10 years after the initial symptoms start, but some live much longer than average. This is a devastating disease that leaves the body useless, but does not affect the mind in some cases. MSA is a very rare disease, so funding to find a cure is minimal. So, we are asking you to donate to the Multiple System Atrophy Coalition to help find a cure and effective treatment to conquer this beast.
The Multiple System Atrophy Coalition, is focused on collaboratively building hope for those living with multiple system atrophy.
If you're looking to make a real difference on a global scale, The MSA Coalition is the charity to support this holiday season.
DONATE to this Holiday Hope campaign starting on Giving Tuesday November 27th.