My mother, Ida Comeau Richard was diagnosed with the cerebellar form of Multiple System Atrophy (MSA) in the 1990's. Back then it was more commonly known as sporadic olivopontocerebellar atrophy (OPCA) or cerebellar ataxia. If you've not heard of MSA it is a rare neurodegenerative disorder commonly misdiagnosed as Parkinson's Disease but it progresses quickly like Lou Gehrig's Disease or ALS. Like ALS, there is no treatment and the outcome is always the same. There are no drugs to stop the progression and people inevitably lose the ability to walk, eat independently and manage their own daily care. My mother died at age 55, about 6 or 7 years after her first symptoms appeared. Researchers are working hard to understand what causes MSA so they can find a treatment or cure. Funds are desperately needed now. The Multiple System Atrophy Coalition is the leading charity in the world focused on this disease. Please help them eliminate Multiple System Atrophy by giving generously this Holiday Season.
Thanks very much!
The Multiple System Atrophy Coalition wrote:
SPECIAL NOTE: ON GIVING TUESDAY NOVEMBER 27 - ALL DONATIONS MADE TO THE MSA COALITION'S TEAM MEMBER PAGES WILL BE EARMARKED FOR RESEARCH
Since 1989, The Multiple System Atrophy Coalition has focused on collaboratively building hope for those living with multiple system atrophy.
In support of families facing this disease, each year we host the world's largest live streamed MSA Patient & Family Conference. Our toll free MSA support line is staffed by past care partners who have extensive experience in managing all aspects of daily care.
Through activities like sponsoring and promoting prestigious MSA research conferences, supporting young investigators, and directing over $1.6 million towards 36 MSA research projects so far, the world's MSA research experts turn to us for partnership and collaboration.
This past year we hosted the 1st ever Global Meeting of MSA Charities in New York City. We sponsored the International MSA Congress bringing together over 200 MSA researchers to share their latest findings. During March MSA Awareness Month, we rang the NY Stock Exchange Closing Bell.
If you're looking to make a real difference on a global scale, The MSA Coalition is the charity to support this holiday season.
DONATE to this Holiday Hope campaign starting on Giving Tuesday November 27th.
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Together We Are Building Hope for MSA.