“She made broken look beautiful and strong look invincible. She walked with the universe on her shoulders and made it look like a pair of wings.” – Ariana Dancu
Nikaury Portalatin Peña is an intelligent and loving 18-year-old young lady from La Romana, Dominican Republic. Nikaury was born with a benign disease known as Neurofibrosarcoma, which is the development of tumors that develop in the cells surrounding the peripheral nerves. Neurofibrosarcoma is considered a soft tissue sarcoma- cancer that originates in soft tissue. There is no known cause for the disease, studies show that genetics may play a role in the formation of soft tissue sarcoma. Tumors can range in size and location and can cause difficulty walking, using arms, legs, hands, and feet.
Nikaury began to undergone surgeries at the age of two and has had a total of 8 surgeries each one becoming riskier because of the ongoing development of her tumors. At the moment she has a large tumor on the left side of her neck and a large protruding tumor along the left side of her back and smaller ones throughout her entire body making it hard for her to walk and take care of herself.
Aside from her condition Nikaury is just like any other beautiful young girl, she loves to go out, and spend days at the beach, she loves to decorate and is very detailed with everything she does, she loves to eat chocolate and is a very joyful and positive girl. The most important thing to Nikaury is family; her family consists of both her mom and dad and three other siblings, her being the oldest. her family cares for her and helps her with everything she needs.
As a foundation, we are seeking help for Nikaury and her family, while there is no cure for her disease we want to help make her life a little bit easier. We are seeking donations to provide her with first necessity items such as diapers, clothes such as dresses and pajamas, food, and personal hygiene items. She is in need of a walker and a new bed to provide her comfort. The received funds will be used to purchase the items above and to help fund her medical treatments, medications, and medical bills.
Any donation given will be greatly appreciated by us, but most importantly by Nikaury and her family. She is strong and brave and loving and we want to continue to help her with everything we can. Give today with inspiration and God bless.