In Ukraine, parents of children with special needs are encouraged to hand their children over to state care. They are told their children are a burden on society. Children are sent to institutions where they are subjected to abuse and neglect. There is minimal support available to parents who fight to keep their children with them. Maya's Hope wants to help relieve some of the burden on these amazing parents and assist in keeping children with their families, where they belong.
Katya was born prematurely, in the eighth month of pregnancy and was immediately transferred to intensive care as she could not breathe on her own. She was diagnosed with bilateral pneumonia. Her condition seemed to improve, Katya could breathe on her own. But suddenly attacks of suffocation began. Testing found she had damage to her brain. At the Kharkov Institute of Genetics there was an anomaly of the lung identified and signs of a rare genetic disease. But to confirm this, an additional expensive examination is needed which cannot be performed in Ukraine.
Katya is now a little over a year old. She lives with her mother in the hospital. Katya doesn’t eat on her own, only through a nasogastric tube, since she has no reflexes (sucking, swallowing). Katie has a mom, dad and an older brother. For a year, mom has been at the hospital with Katya Monday to Friday and in the weekend Dad stays with her. The family dreams of all being together and living at home. But for this they need equipment that would allow enable her to be cared for at home.
They need an electric suction pump that will remove mucus and saliva. And for continuous administration of drugs through venous access, they need an infusion pump.
When we reach our goal, we will be able to purchase this equipment for Katya and her family. Any amount raised above our goal can be used to provide Katya with essentials such as formula and diapers.