Most of you know that Griffin was born prematurely and with three congenital heart defects. He was diagnosed at three days old while in the NICU and made it to the age of 18 months old before requiring surgical intervention! Since his open heart surgery he has been doing well and is a completely typical toddler.
Congenital heart defects are the most common birth defect, and 1 in every 100 children is born with some form of CHD. While some children require little to no intervention, many are faced with a lifetime of challenges and care.
This year Mark, Piper, Luke, Griffin and I are linking arms with other heart families and walking together in our first virtual Conquering CHD walk. Below you can read about Conquering CHD - Illinois' mission and what your donations will be used for. Join Griffin's team to walk in honor of his (and all other heart warriors') courage and strength to help us reach our goal in CONQUERING CHD!
The Conquering CHD - IL chapter is a program of Conquering CHD, aimed at improving the lives of those with congenital heart disease and their families through direct support and education – meeting families where they are.
Through our State Chapters we are able to give knowledge, give a voice and give hope, directly meeting the comprehensive, lifelong needs of patients with congenital heart disease and their families through support, education, advocacy and research programming.
Local activities include:
-Conquering CHD Kits offering critical information and a personal connection for patients with CHD of all ages through individualized care packages
-Online chat networks bringing people with similar experiences together
-In-person peer support offering patients and families encouragement and insight from someone who has walked a similar path
-Social events providing a safe environment to celebrate life and simple joys together
-Physician education improving understanding of congenital heart disease from the patient and family perspective
-Research promotion and participation helping promising developments become reality
-Advocacy activities sharing our stories to improve federal research funding.