WHY WE GIVE
As many of you know, I lost my husband over 5 years ago before our son was born.
In an effort to help cope with the anxiety surrounding my wedding anniversary and help teach James about focusing on gratitude and giving back our family began Give With James. Give with James became our annual campaign to give back to the world around us and each year we select a charity to support together. This year we would like to honor my dear niece Sara and support the National Organization for Rare Diseases (NORD). Here is a little glimpse of her story:
What if your child was diagnosed with a disorder only 43 other people had? What if the doctor told you that they had finally figured out what was causing your child's delays but that they had no idea what else you could expect? Well for our beautiful Sara that was pretty much the case. For the most part, Sara was a typical baby except she didn't seem to want to crawl with her peers, and this delayed mobility continued as other kids her age were walking and running and she was still struggling to scoot around. After a bunch of scary doctors visits, meetings with specialists and multiple expensive genetic tests we were finally told that Sara has a USP 7 mutation. Most of the time a diagnosis leads to answers and treatments, but in Sara's case (the 36th known case of USP 7 in the world at the time) the diagnosis led to so many more questions. As time goes by she continues to teach us to focus on joy and not be defined by other's expectations of what we are capable of and we can't wait to see the RARE beauty she will grow up to be.
Please join our little village in raising money (and climbing for a cause) to support families accross the world with children with rare disorders and provide funding for valuable research for these often underfunded disorders.
This year our Give With James campaign will focus on raising money for the National Organization for Rare Disorders (rarediseases.org). We will also be hosting our first official event so we can come together and have some fun as we support Sara and other kids like her. Also just like last year, we are partnering with All the Crave Cheesecakes so if you find yourself in Cypress, swing by the store and grab a 'Give with James' Cheesecake to support our cause in the yummiest way possible.
Climbing for a Cause and Silent Auction
Momentum Indoor Climbing Katy
July 19, 2019 from 3 to 7 pm
Requested Contributions Adults - $25 Kids - $15
All proceeds go to benefit NORD
If you can join us, please register through the link above. If not, we would love for you to still help us support families of children with RARE disorders by:
1. Clicking the donate link above and helping NORD.
2. Reaching out to coordinate a silent auction donation.
3. Getting in touch with a rare disorder charity that resonates with you to see how you can make a difference.
4. Stopping by All the Crave Cheesecakes to purchase a one of a kind cheesecake. All profits from Give With James cheesecake sales will go to NORD.
All registration proceeds and donations will go to benefit NORD.
Please also consider if your employer has charitable matching. NORD is a registered 501(c)(3) charity.
#givewithjames #ourraresarabear #welovesomeonerare #littlemencandobigthings #ourvillagerocks #usp7 #dup15
