Gavin Quimby was diagnosed with metachromatic Leukodystrophy(MLD), a rare degenerative neurological disease at the age of three. He was then treated at the University of Minnesota Masonic Children's hospital with a bone marrow transplant. The bone marrow transplant was successful but he acquired an upper respiratory virus that destroyed his still healing lungs with Graft vs Host Disease. This ultimately took his life at the age of five. Gavin was a bright and beautiful little boy with a loving personality. He made people smile and was so brave during his diagnosis and treatment for MLD. His parents, Shanna and Nick Quimby nicknamed him Super Gav because of his bravery. Gavin’s parents along with Senator Jeremy Miller passed a law, The Super Gav Act, in which newborns are tested for Adrenal Leukodystrophy and two other rare diseases so that they can be treated as soon as possible. This along with The Super Gav Fund at The University of Minnesota’s Leukodystrophy Center has helped many babies be diagnosed and treated quickly. Our goal is to raise $1,000 by September to donate to the University of Minnesota’s rare disease research doctors, Dr. Paul Orchard and Dr. Jakob Tolar. With your generous contributions, we will be able to continue to help children like Gavin with rare diseases be treated with better success.
Fly High, Super Gav, lets keep flying for a Cure!