Last year my cousin Dan decided to run a marathon and asked for my help. With three weeks of training. Crazy, right? Even crazier....we did it - and he raised $26,200 for reserach for his daughter Raena's rare disease - Friedreich's Ataxia. Yep, that's $1000 per mile in just 3 weeks time!
This spurred a series of amazing events, starting with a researcher - qualified, ready, and willing to pick up a study on FA. FA often takes the lives of young people in their 20's so waiting on grant money was not the best option. Dan founded a new non-profit called The Finish Line Fund, and raised morw than $90,000 in just over a month to kick it off.
The results have been nothing short of amazing. For 2018, Dan and I have been invited to run the New York City Marathon on behalf of FARA and we couldn't be more excited. Furthering research and building on the things they are finding has been extremely rewarding and has provided so much hope! We can't wait to see what's next!
Friedreichs Ataxia Research Alliance Fara wrote:
Team FARA is made up of people who participate in endurance events on behalf of the Friedreich's Ataxia Research Alliance (FARA). FARA is a non-profit organization dedicated to curing Friedreich's ataxia or FA through research. FA is a, life-shortening, degenerative neuro-muscular disorder that affects 10,000 to 20,000 worldwide. There is currently no treatment or cure for FA, but FARA is working to change that. Thanks to fundraisers like this, FARA funds basic research, drug development, clinical trials, and scientific conferences to provide hope for a cure. For more information please visit their website curefa.org