Ainsley's Angels of Americais super excited to be spreading awareness and smiles through activism and education!
My son has a rare disease, a FOD (Fatty Acid Oxidation) disorder called SCADD. Essentially what it means is that his body doesn't process stored fats. Often, he goes into a crisis. Like diabetics, he needs to eat small meals often, and keep up with what his body is burning for calories. Unfortunately, unlike diabetics, his blood sugar doesn't crash.
So we have to monitor his personality to see how he is, similar to the snickers commercials, he gets 'hangry' fast! If he doesn't eat quickly, his legs will start to hurt as his muscle starts to be broken down, he gets lethargic, spacey, have seizures, can go into a coma, and die, all in the space of 2 hours. So obviously we have to keep a close eye on him. He also gets dehydrated quickly which can also cause a crisis. He cannot run for much, cant do many sports, etc, or anything for that matter. Therefore hes always with me, or one of a few adults that can identify a crisis fast.
He always wants to 'race' with me, and until now, I just brought along the jogging stroller. But he just turned 8, and honestly, he is super tall for his age, at almost 5 feet, and 90lbs, so the thing just won't hold him anymore. I tried a 5k with him this past weekend, he was able to run them walk the first quarter mile, then I piggy backed him the rest of the race, except for the 3 hills obviously! We just need something that we can use for races, plus that can double as something for super long trips/heat/etc, especially in an emergency.
I have lost 80lbs myself since he was born, to keep up with him, carry him, etc. This is why I started running, to be healthier for him. And now he loves being with me, doing these races! He loves to hop out, or off my back, to say he crossed the finish line himself! I knew the day would come where I can't carry him in an emergency. It's coming soon. And it's hot already here, so it's even harder on my asthma, and his as well.
Thank you, Michelle
Together, WE Shall ensure this becomes a reality! Click the button in the upper right of this page or email: Info@AinsleysAngels.org for a link to make a donation using PayPal and/or for a mailing address should you prefer to donate by check.
We will ensure all donations appear on this page as off-line donations and any funds that exceed the goal, will go to aid in execution of the Ainsley's Angels of America mission!
Another way to help, is to spread our message and efforts:
1. Visitwww.AinsleysAngels.org to purchase the children’s book, Born an Angel, written by Ainsley’s then 11-year old sister and donate it to a local elementary school library!
2. Follow us on Instagram, Snapchat, and Twitter: @ainsleys_angels
3. Lastly, we invite you to enjoy this amazing videoand subscribe to our YouTube channel!
Additionally, all contributions to are TAX DEDUCTIBLE under section 170 of the IRS Code, as Ainsley’s Angels is qualified to receive tax-deductible bequests, devises, transfers or gifts under section 2055, 2106 or 2522 of the Code. Our tax ID is EIN 45-3576353 and our IRS tax exemption ID (DLN) is 17053067330003. Of note, all donations through this page will receive a Donation Receipt from Crowdrise for upon donating and all goal overages will aid Ainsley’s Angels in mission execution!
