We are joining The Champ Foundation's annual fundraiser in order to help fund more research into a cure for Pearson Syndrome. So much ground has been made already, we are sure that a cure will be found one day and we hope and pray that Moshe will be here for that day.All research into Pearson Syndrome has been funded completely privately by fundraisers such as this. With so few children affected around the world, it is understandable that there is little interest or need to solve this problem. But we have a reason and we will do whatever we can to save our baby.The work of The Champ Foundation will mean that one day no more parents will hear "there's nothing we can do".Here's some information about Pearson Syndrome;Pearson Syndrome (PS) is a multi-system disease caused by a deletion in mitochondrial DNA. The hallmark features are bone marrow failure, immunocompromise, sideroblastic anemia and pancreatic insufficiency. PS is most often fatal in infancy or early childhood.