“Growing up with lymphedema wasn't the most pleasant. I was known as the "girl with the big leg". Leaving doctor appointment after doctor appointment with zero answers caused emotional turmoil not only for myself but to those around me. Even though I was born with LE in 1981, I wasn't diagnosed with the incurable disease until 2013.
However my leg and all of the obstacles which accompanied it instilled the fire within me to create a world where people with LE should not have to feel isolated or ashamed but rather empowered. I am determined to help people with LE to not only embrace their incurable disease but to use it as a voice to raise awareness.
Our vision is to bring awareness about the prevalence and devastating effects of lymphedema in our communities and inspire patients to stay compliant with treatments offered. Our goal is to promote and create a lifestyle that focuses on living a positive life with lymphedema.
Our mission is to educate our lymphatic community and medical professionals concerning the importance of early diagnosis, compliance, and resources needed to reduce the medical costs epidemic. Using our proactive approach, in combination with our compliance programs and partnerships, we will provide the tools and resources necessary to promote a healthy lymphatic lifestyle and reduce the financial burden of lymphedema.
Our voices will no longer be muffled. Together, we will #winourfight.
Amy Rivera, Founder