Fight Walk 2019

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Event Details
Fight Walk 2019

Lymphedema is a relativity unknown disease in america. According to the Lymphatic Education & Research Network up to 10 million Americans, and hundreds of millions worldwide, suffer from lymphedema and lymphatic diseases. More people suffer from these diseases in the United States than suffer from Multiple Sclerosis, Muscular Dystrophy, ALS, Parkinson's disease, and AIDS -- combined. 

All cancer treatment survivors, including those of melanoma, prostate and ovarian cancer, are susceptible to developing lymphedema. Breast cancer survivors can be at a high risk for developing lymphedema and 100% of those treated for neck and head cancer will develop the disease. Physical trauma can also result in lymphedema, a major cause of lymphatic disease among our wounded veterans.

Those with lymphedema often live their whole life searching for answers, living a life with unnecessary limitations both physically and emotionally.

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Saturday September 28th
Jefferson Barracks Park, North Road West, St. Louis, MO, USA
Jefferson Barracks Park, 345 North Rd W, St. Louis, MO 63125, USA

Out of The Darkness

“Growing up with lymphedema wasn't the most pleasant. I was known as the "girl with the big leg". Leaving doctor appointment after doctor appointment with zero answers caused emotional turmoil not only for myself but to those around me. Even though I was born with LE in 1981, I wasn't diagnosed with the incurable disease until 2013.

However my leg and all of the obstacles which accompanied it instilled the fire within me to create a world where people with LE should not have to feel isolated or ashamed but rather empowered.  I am determined to help people with LE to not only embrace their incurable disease but to use it as a voice to raise awareness. 

Our vision is to bring awareness about the prevalence and devastating effects of lymphedema in our communities and inspire patients to stay compliant with treatments offered. Our goal is to promote and create a lifestyle that focuses on living a positive life with lymphedema.

Our mission is to educate our lymphatic community and medical professionals concerning the importance of early diagnosis, compliance, and resources needed to reduce the medical costs epidemic. Using our proactive approach, in combination with our compliance programs and partnerships, we will provide the tools and resources necessary to promote a healthy lymphatic lifestyle and reduce the financial burden of lymphedema.

Our voices will no longer be muffled. Together, we will #winourfight.

Amy Rivera, Founder

Posted by Ninjas Fighting Lymphedema Foundation

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