I joined Chloe's Fight and the Big Fat Greek 5k Committee to support rare disease research at the University of Minnesota. As someone with a rare disease myself, I love being able to advocate for other rare disease warriors and their families. My favorite saying in the rare community is "alone we are rare, but together we are strong" which is exactly what this 5k is all about.
The pure strength and vulnerability I've witnessed in the families whose young children have passed away from MLD, like Chloe and Thomas, has inspired me to continue advocating outside of my comfort zone. I'm excited to join in on this adventure and raise some money to change the future of rare diseases!