Who? Faith , Cystic Fibrosis patient
What? Crossing for a Cure: An 80 mile Stand Up Paddleboard race across the Gulf Stream
When? Saturday, June 20th
Where? Bimini Bahamas to the East Coast of Florida
How? Lots of training!
What does a girl do when she turns 17 and has already been given the only real gift she’s ever wanted? She turns around and gives back, that’s what she does!
As many of you know, my life has been completely changed by the revolutionary new CF drug, Trikafta. Sadly, Trikafta isn’t the miracle for all CF patients that it’s been for me and we are still losing too many. In the past two weeks, our community has lost several children, and cold/flu season hasn’t even hit its peak.
This year I am partnering with Piper’s Angels to raise money to fight Cystic Fibrosis. Piper’s Angels is an amazing organization that not only donates to research for more breakthrough drugs, but helps patients and their families with emergency financial needs, and activity scholarships.
Trikafta has been my miracle, but we’re not done until its done for everyone!
Crossing For A Cure is a long-distance endurance paddle challenge and international championship that takes paddlers 80 miles across the Gulf Stream from Bimini in the Bahamas back to the Florida mainland in Lake Worth. The event was inspired because of the incredible health benefits of the Ocean for those living with cystic fibrosis. Travis Suit's daughter Piper was diagnosed with CF when she was four years old.
About cystic fibrosis
Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. In people with CF, a defective gene causes a thick, buildup of mucus in the lungs, pancreas and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients.