We were 12 weeks pregnant when we found out our sweet baby was not perfect. In addition to imperfections of the gut and liver, a spleen was absent and the heart was broken. So very broken. After our 14 week ultrasound we were given the diagnosis of Heterotaxy Syndrome and a laundry list of heart defects. We also found out our perfectly unique baby was a boy! Our life since his diagnosis has involved hours of research, numerous phone calls with other empathetic parents, consults with doctors, lots of imaging studies, and of course, a battle of emotional highs and lows. God has shown his faithfulness and hand on Ethan and our family since that day. The connections we have made have been nothing short of miraculous. Mended Little Hearts has been one of those connections that has made our lives easier, as we walk along those that really know our pain. Three heart surgeries later, Ethan will need cardiac check ups and possible surgeries throughout his entire lifetime. We are so thankful to know Mended Little Heart will be there for our family every step of the way!
Our passion now is to make sure all families facing a diagnosis of congenital heart defect know about our local Mended Little Hearts chapter so they can receive that same support! Help us raise funds to support these special families!