Ed was diagnosed with Multiple System Atrophy (MSA) on July 15, 2015. His symptoms were present before then, but this neurodegenerative disease is difficult to identify in its early stages. There is currently no cure or treatments to slow the progression of the disease. Ed died on July 10, 2020 at the age of 78 years old. At diagnosis, he was an active member in his community participating in multiple charitable, sport, and leisure activities. Within 3 years, he could no longer participate in any of these and memory care became required shortly after. This MSA Research Funding has been setup to support research towards a cure and treatments of the disease. It is a rare disease that equally affects men and women and presents in ages ranging from 30 to 90+. He suffered from MSA-P which is similar in nature to Parkinson's Disease, but with a much more rapid disease progression.
Throughout his life, Ed was always helping others. This funding has been set up to carry on that spirit and fund research to improve the lives of others suffering from this terrible disease.
More in-depth information about Multiple System Atrophy can be found from the National Institutes of Health by clicking here.
Information about The Multiple System Atrophy Coalition where your donations will go can be found here.
Mail-in donations are possible using the form found here.
The Multiple System Atrophy Coalition® is a registered 501(c)(3) charitable organization. All donations may be tax deductible (check with your financial advisor).