Dylan was born in January 2006 at Valley Care Medical Center in Pleasanton, CA. He was delivered via C-Section after an attempted vaginal birth. Shortly (hours) after birth he experienced seizure activity. He was then transported to Children’s Hospital and Research Center (CHO) in Oakland, CA. The seizures were determined to have been caused by two bleeds in his head as a result of the cranial plates deforming in the attempted vaginal birth. The seizures were treated and he was eventually cleared by his Neurologist. At that time she felt that the seizures were a natural response to the blood in the cerebral-spinal fluid and as soon as that cleared they would stop; which they did. A follow-up visit in March/April of 2006 resulted in a clean neurological slate.
It was while at CHO that he was diagnosed with the congenital heart defect, which has been dealt with as follows:
At 10 days of age, Dylan had his first heart surgery to repair the coarctation of the aorta and place a pulmonary band. At five months of age he had his second surgery, a bilateral, bidirectional Glenn shunt without takedown of the pulmonary band. At twenty-two months, he had his third surgery; a dual operation known as Damus-Kaye-Stansel procedure with the placement of 20 mm extracardiac fenestrated Fontan.
Today, Dylan is a single ventricle physiology and otherwise healthy 12-year old. He enjoys music (piano and percussion), cooking, computer games and school, especially math and sciences.
Dylan loves all aspects of Camp Odayin...Summer Camp, Winter Camp and Family Camp. He has made many friends at camp and enjoys being with others that have similar heart ailments.
Dylan, brother Tyler and mom & dad, Kelly and Stan will very much appreciate and support that you can provide our Team to help support sending every 'heart kid' to Camp Odayin.
Thank you from the very bottom of our hearts!