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D/FW SUPER HERO AWARENESS WALK & Family Fun Day

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DSN Awareness Walk- Dallas/Fort Worth

PRE-EVENT REGISTRATION HAS CLOSED. 

IN-PERSON REGISTRATION WILL BE AVAILABLE STARTING AT 1:45PM ON SATURDAY.

DSN and the O'Shea Family are hosting a SUPERHERO Dysautonomia 1-mile Walk & Family Fun Day at Trinity Christian Academy in Addison from 2-4pm on October 20th.  PLEASE JOIN US! 

TShirts are available for $10.  A GIANT THANK YOU TO PricewaterhouseCoopers for being our PREMIER SPONSOR! The $30 registration fee includes Kona Ice, Kind Bar and Popcorn. Water will also be provided.

IMPORTANT NOTE: DURING REGISTRATION MAKE SURE YOU CLICK "JOIN A FUNDRAISER" so you can be on one of our TEAMS!

And if you can't join us, please consider making a donation to this worthy cause. NO AMOUNT IS TOO SMALL!

The success of our events depends upon the generous participation and support of our friends and family. If you would like to donate your time and talent as entertainment during the event, or would like your business to sponsor, please contact: brookeoshea@dysautonomiasupport.org for more information.

100% of funds raised go to providing support, resources, education and advocacy for patients affected by the many forms of Dysautonomia and related conditions such as Connective Tissue Disorders, Mast Cell Activation Disorders, Chiari Malformation and Gastric Motility Disorders. 



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When
Saturday October 20th
2pm-4pm
Where
Trinity Christian Academy, Addison Road, Addison, TX, USA
17001 Addison Rd, Addison, TX 75001, USA

Please JOIN US
Our Story

Watching someone you love enduring chronic illness and pain is devasting.  When that person is your child, devastation yields to an intrinsic need to take action.  Today, I’m reaching out to ask you to help make an impact for my children and the over 70 million people suffering from dysautonomia  worldwide. 

You may or may not know that we recently discovered our daughters, Regan and Delaney, were born with Ehlers-Danlos, a genetic connective tissue disorder that often leads to neurological and cardiac complications, especially in the teenage years. My oldest daughter had developed extreme fatigue, dizziness and frequent bouts of tachycardia which felt like panic attacks and interfered with her ability to learn, live a normal life and even attend high school. Afte having her symptoms misunderstood for years, she was finally diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome), one of the common forms of dysautonomia.  I joined the BOD for Dysautonomia Support Network and now our family is HOSTING THIS EVENT TO RAISE AWARENESS.

Dysautonomia is a broad term used to describe a group of neurological disorders that involve the autonomic nervous system. After almost 12 years of ongoing and debilitating medical issues, endless consulting with and endless amount of doctors, experimenting with a multitude of drugs and medical treatments, we finally had an answer.  That relief was immediately met with fear: now what? What does it mean to live with dysautonomia? Can it be successfully treated? How can we improve the quality of our girls’ care and lives? We didn’t have the answers, but we did find a light to help guide us through this new reality: the Dysautonomia Support Network.

The Dysautonomia Support Network seeks to bring hope and progress to individuals living with Dysautonomia and associated disorders.  This non-profit organization guides over 12,500 patient members globally through their health management journey, from diagnosis and treatment to advocacy and lifestyle management.  Members have access to the resources, support, and education needed to adapt to life with chronic illnesses while being challenged to set new goals despite their physical limitations.  

Posted by Dysautonomia Support Network





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