In Ukraine, parents of children with special needs are encouraged to hand their children over to state care. They are told their children are a burden on society. Children are sent to institutions where they are subjected to abuse and neglect. There is minimal support available to parents who fight to keep their children with them. Maya's Hope wants to help relieve some of the burden on these amazing parents and assist in keeping children with their families, where they belong.
"We live in a small village and always counted on our strengths, but unfortunately, not always
it turns out. Our family has 2 boys - Sasha (14 years old) and Arthur (23 years old). They have the same diagnosis: genetic pathology, congenital malformations of the heart, brain, cerebral palsy, severe developmental delay, epilepsy. Sasha and Arthur have undergone rehabilitation courses more than once, but due to their severe form of epilepsy, this does not happen often. They are on anticonvulsant therapy, levicitis and topiromax. When the boys feel good they are very
positive and sociable, love music and cartoons. Sasha is now in the Regional Children's Hospital in the Department of Diagnostics. He has a very serious condition. After injections, tissue necrosis formed, which provoked sepsis. The operation is ahead. In the meantime we buy expensive medicines and supplies. The state almost does not help us, citing a lack of funding. I work as a nurse on night shifts, and my husband in the afternoon. Despite everything, we have the best family! And we are happy when the boys are healthy!"
We want to help this family during this very difficult time by purchasing diapers and formula for Sasha for the next 3 months. Can you help?