This will be our 5th annual meeting in the US for families who have child with DYRK1A Syndrome. With only 350 diagnosed worldwide, these meetups become a very important event to attend. It is often the first time families have met another family with DYRK1A Syndrome. It is often the only opportunity for families to learn from professionals who have seen multiple patients with the syndrome. In addition, they will learn from researchers studying the gene in laboratories
Currently there are 165 families in the United States. 45 different families have attended at least one of the meetings with some attending more than one. In total we have had 80 family attendees at the past four meetings. As we grow each year the cost per family has increased because we need a bigger space which ends up increasing the cost all around. The average cost for the past four meetings is $432 per family or $98 per person. This event has been free to the families, we rely 100% on generous donors to support this event. Can we count on your support for this very important event?
350 families worldwide
165 families in the United States
80 families attended past four meetings
$432 per family cost to the organization
$98 per person cost to the organization