Danielle started this fundraising campaign because she has Congenital Heart Disease and wants to help by raising funds for awareness, support, research and new treatments for CHD.
Danielle was born with coarctation of the aorta, bicuspid aortic valve and ventral septal defect (VSD). She has had 4 open heart surgeries and a few procedures to treat heart arrythmias. She has a mechanical value and a defibrillator. Because of the great medical technology we have today, Danielle's health is great!
About Conquering CHD Organization
The Conquering CHD - IL chapter is a program of Conquering CHD, aimed at improving the lives of those with congenital heart disease and their families through direct support and education – meeting families where they are.
Through our State Chapters we are able to give knowledge, give a voice and give hope, directly meeting the comprehensive, lifelong needs of patients with congenital heart disease and their families through support, education, advocacy and research programming.
Local activities include:
-Conquering CHD Kits offering critical information and a personal connection for patients with CHD of all ages through individualized care packages
-Online chat networks bringing people with similar experiences together
-In-person peer support offering patients and families encouragement and insight from someone who has walked a similar path
-Social events providing a safe environment to celebrate life and simple joys together
-Physician education improving understanding of congenital heart disease from the patient and family perspective
-Research promotion and participation helping promising developments become reality
-Advocacy activities sharing our stories to improve federal research funding.
Find more information about Conquering CHD at: www.conqueringchd.org
Conquering CHD - Illinois www.conqueringchd.org/Illinois