I will be running in the 2019 Lost Lake race in Seward, AK. I will be participating in this race as a fundraising participant and have pledged to raise at least $400, I would love to see that number grow higher with all of your help.
"There are currently about 30,000 people living with cystic fibrosis in the United States alone, while more than 75% of the patients are diagnosed by age two. In addition, statistics reveal that approximately 1,000 new cases of CF are diagnosed in the country each year. However, the diagnosis of the disease is still often delayed or mistakenly conducted and, according to the study “Misdiagnosis of Cystic Fibrosis,” the rate of misdiagnosis is about four percent. On the other hand, the life expectancy for patients with CF has greatly increased in the past years. According to CFF’s National Patient Registry, about half of the patients are older than 18, and the median age of survival for a person with CF is currently 33.4 years, with patients living into their fifties or sixties. This is a great improvement since only thirty years ago, a CF patient was not expected to reach adulthood."
Please consider even just donating a dollar to help support this great cause and allow research to continue to be developed so that people with his disease may be able to breath a little easier.