This girl. This young woman. She will be 18 this month! And she can't remember a time when Juvenile Myositis didn't cast a shadow over her future.
Like so many of her peers, she is applying to colleges and preparing to strike out on her own. Unlike many, though, she has extra factors to consider, including:
· Proximity to good care - since there are only 300 pediatric rheumatologisists in the entire country, and even fewer adult rheumatologists with experience treating JM patients
· School supports and accommodations around disability
· Resources around mental health - because living with chronic illness takes a toll on mental wellbeing
I would give anything to take these extra concerns away, but I can't. But, I CAN continue to support the crucial work of Cure JM Foundation, including:
· Making JM research at 24 major institutions around the world possible
· Funding drug discovery and development research, so children will have more and better treatments
· Investing in research to understand the genes that contribute to JM
· Finding and supporting the “best and the brightest” of the next generation of doctors and researchers that will support and treat our children
Why does your gift of hope matter? When a child is diagnosed with Juvenile Myositis, their young life is turned upside down. This disease changes everything. The child faces a body fighting itself. Juvenile Myositis can attack any system of the body. And like most rare diseases, JM research funding comes almost entirely from grassroots efforts like these fundraising pages.
Leading up to Giving Tuesday on December 3rd, your gift has an even bigger impact! Thanks to the Leetz Family Match, if we raise $300,000 by Giving Tuesday, we can earn up to $150,000 in matching. This will help ensure no promising research is left on the table in 2020.
We are forever grateful to you and your support. It means so much to us.
Thank you for giving the gift of hope this holiday season.