This holiday season, give Taran the only gift that matters – hope for a brighter future.
When a child is diagnosed with Juvenile Myositis, their young life is turned upside down. This life-threatening disease changes everything. The child faces a body fighting itself. It can attack any system of the body. There are no FDA-approved treatments. There is no cure...yet.
It is hard to believe Taran was diagnosed with Juvenile Myositis a little over 10 years ago. I still remember the first year of diagnosis. His young life was turned upside down as was his sister's and our own. The first year we felt like we were barely keeping above water. We had to develop a new norm. Finally, after 4 long years, he went into remission. We felt like that chapter was finished, but instead, he relapsed 2 years later. Now we are worried that he may be starting to flare. Despite this he continues to find his way. He swims, does indoor sky diving, plays with technology and jokes with his friends and family.
There are no FDA-approved treatments. There is currently no cure.
Imagine a child watching with envy while other kids do things that they can’t do. Imagine missing out on a normal childhood because of hospital visits, day long or week long treatments, and side effects. Imagine living in fear of the sun.
Imagine a child asking, “why me?”
How do you respond to "It's not fair."
None of us would ever wish that on a child.
But we are not powerless. We can help.
Cure JM has made extraordinary progress in Juvenile Myositis research and programs, but there is still so much to do.
You can give Taran hope. Hope for better treatments. Hope for a normal childhood. Hope for a brighter future. Hope for a cure.
Our family is working to raise $5000 for crucial research. Gifts are tax-deductible and go straight to Cure JM. Cure JM’s Strategic Research Plan calls for substantial new investments to identify and understand the genes that cause Juvenile Myositis; new support for drug discovery and funds to get those advanced treatments to our children. They also support the families and patients living with JM.
Like most rare diseases, Juvenile Myositis research is funded almost entirely from grassroots efforts, like this fundraiser.Every single dollar makes a difference and will be put to work at the soonest possible moment to bring new treatments to children like Taran.
Help us reach our goal and give Taran hope for a brighter future by making a gift at https://www.crowdrise.com/o/en/campaign/curejmgivingtuesday/curefortaran
Gifts made before the end of November will be matched dollar-for-dollar by the Leetz Family Match.
Checks can be made out to Cure JM with "Leetz Family Match/Taran" in the memo of each check and mailed to Cure JM, P.O. Box 45768, Baltimore, MD 21297.
Thank you. Your support gives our family the hope and strength to keep on fighting.
This disease never stops so neither can we!
With endless appreciation,
Christy, David, Taran and Moira