Eleven years ago, I took my baby to the dermatologist to help with a “rash” and walked out of the office with a diagnosis that would turn our world upside down…… Juvenile Dermatomyositis.
Many questions raced through our minds with very little answers or explanations.
This disease is life-threatening and can attack any system of the body.
The best way to explain this disease process and Karlee’s everyday life is her body attacks itself.
There are no FDA approved treatments and no current cure for this disease.
For the past 11 years we have traveled to Emory Children’s Center every 2-3 months (because this is such a rare disease no one in Knoxville sees these patients), spent many days in the hospital undergoing treatments, and countless days home sick from injections/medications to try and get this disease under control.
Many have watched Karlee throughout the years in sport activities, church activities, and educational endeavors, but the pain behind closed doors she suffers is heartbreaking. She has and will continue to be an inspiration to many throughout this journey.
I write Karlee’s story to ask for donations in Karlee’s honor for the Cure JM fundraiser in desperation to find a cure for this devastating disease. Gifts made before Tuesday, December 3 will help us earn $150,000 in matching from the Leetz Family Match.
Checks can be made out to Cure JM with “Leetz Match/Karlee” in the memo and mailed to Cure JM, P.O. Box 45768, Baltimore, MD 21297.
Donations will be greatly appreciated, but prayers are what have kept us going all these years and we greatly appreciate it. Please continue to keep her and our family in your prayers. She is doing great at this time and the disease is under control, but unfortunately it can flare at any time.
Karlee Poteet and family.