Callaghan was diagnosed with Juvenile Dermatomyositis on July 9, 2018. Sadly, his disease was misdiagnosed for years after he began to exhibit symptoms. For more than 16 months, he has been on oral steroids. He receives weekly chemo injections and takes close to 80 other pills each week to try to help him gain strength, regain his health, and combat side effects from the medications he's taking. Due to his disease and the medications, he has also developed lipodystrophy , insulin resistance, osteopenia, and pre-glaucoma. However, with support from CureJM and a network of doctors and specialists devoted to his care and the care of others with this disease, we are hopeful that Callaghan will continue to get stronger and that new treatment options will be discovered to lessen side effects and enhance his quality of life. He has come so far in the past 16 months! But, the possibility of a flare of disease activity brought on by a sunburn or a cold that causes a run-away immune response is a constant fear.
This holiday season, give children hope for a brighter future.
Leading up to Giving Tuesday on December 3rd, your gift has an even bigger impact!
Thanks to the Leetz Family Match, if we raise $300,000 by Giving Tuesday, we can earn up to $150,000 in matching. This will help ensure no promising research is left on the table in 2020.
When a child is diagnosed with Juvenile Myositis, their young life is turned upside down. This disease changes everything. The child faces a body fighting itself. Juvenile Myositis can attack any system of the body.
There are currently no FDA-approved treatments. There is no cure...yet. But we can change that.
Like most rare diseases, JM research funding comes almost entirely from grassroots efforts like these fundraising pages.
Why does your gift of hope matter?
All gifts go straight to Cure JM Foundation and will support crucial work, including:
· Making JM research at 24 major institutions around the world possible
· Funding drug discovery and development research, so children will have more and better treatments
· Investing in research to understand the genes that contribute to JM
· Finding and supporting the “best and the brightest” of the next generation of doctors and researchers that will support and treat our children
We are forever grateful to you and your support. It means so much to us.
Whatever level of support you can consider, please know that we will put it to work at the earliest possible moment to find better treatments.
We always say, “A Cure Can’t Wait.”
Neither can these kids.
We’re so grateful to you. Thank you for giving the gift of hope this holiday season.