This summer I am excited to run my fourth Falmouth Road Race with CureSMA in support of my family- my aunt, uncle, and their five children- and all others who have been affected by Spinal Muscular Atrophy.
Spinal Muscular Atrophy is the number one genetic cause of death for infants, and approximately 1 in every 50 individuals is a genetic carrier for SMA. BUT, there's great reason for hope- we know what causes SMA and what we need to develop effective treatments. There are now TWO FDA approved drugs to treat SMA, and it's incredible to see what they can do!
CureSMA is uniquely positioned to direct funds to where they can make the greatest difference as quickly as possible. They have already invested more than $62 million in research. They also provide vital support for families living with SMA, improving their quality of life today. And every year they host the largest SMA conference in the world, bring families together with leading SMA researchers.
Please join me and support Cure SMA by making a contribution! Making a donation is easy, secure, and completely confidential. Just click on my "Donate Now" link and follow the steps!
Thank you again for your personal gift and support - know what these efforts have a tremendous impact on those affected by SMA, and are funding vital research and family support programs.
Join Team Cure SMA and raise funds and awareness as you run through beautiful Cape Cod!