CURE SANFILIPPO FOUNDATION
What is Sanfilippo Syndrome? Sanfilippo Syndrome is a fatal brain disease in children. It's rapidly degenerative and takes away a child's mind first, and then their body. It's often likened to a 'Chilhdood Alzheimer's' due to the extensive dementia that occurs. Death is usually in the teens, but preceded by years of severe disability. It is the most devastaing and heartbreaking diagnosis a parent could receive. Imagine only being able to watch as your beautiful child fades away and dies.
Currently, there is no proven treatment or cure...YET...and that's where Cure Sanfilippo Foundation comes in.
Families around the country and world are fighting for a Cure. You can meet many of the families and chldren by seeing the TEAMS created below. There are thousands of children suffering from Sanfilippo.
Cure Sanfilippo Foundation funds research for treaments, and one day, a CURE. There is promising and breakthrough research that can lead to clinical trials for children; a chance at LIFE. But funding is needed.
The Foundation long term goal is a day when newborn screening exists and proven treatment or cure can be delivered soon after diagnosis, as well as pre-conception screening. Along the way, we hope to help save as many children as possible. The work must be done in an urgent fashion as the lives of children living today hang in the balance.
We are $100,000 away from our 2018 Goal to raise $2Million to take reasearch projects to the next phase and save children's lives. This is our FINAL push. Will you help us get there please?
For more on Cure Sanfilippo Foundation, visit www.CureSFF.org
On Facebook at www.facebook.com/CureSanfilippoFoundation