Cure GM1 Ride, Run, Hike, Walk in June

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A Cure Begins with You.  Join our Virtual Event Today!


Join this virtual event in support of all those suffering from GM1 Gangliosidosis, a fatal neurodegenerative disease that primarily impacts children.   Help fund urgent research and support patient advocacy and the GM1 community!  Participate from anywhere in the world and at your own leisure during the month of June.  Ask friends, co-workers, and family to join the team!


Optional:

UPenn is offering a lower price point for cyclists this year. Team members will soon be able to register at $45 as entry to the MDBR.  See milliondollarbikeride.org for the registraton.  If you wish, please participate in the Million Dollar Bike Ride which will have a series of events and also a 

Peleton team.


The CURE GM1 FOUNDATION’s mission is to fund research for the benefit of all those who suffer from GM1 gangliosidosis.  This nonprofit organization was founded by parents of children who suffer from GM1 who seek to save the lives of all those who suffer from this wretched condition. The Cure GM1 Foundation is dedicated to directly funding research for a cure for GM1 gangliosidosis – a lysosomal storage disease that attacks the brain and spinal cord.  Over 50% of those impacted die before their fifth birthday.  GM1 is a progressive and degenerative condition with an extremely broad and debilitating array of symptoms and complications.CURE GM1 is the only 501(c)(3) nonprofit entirely dedicated to GM1 Gangliosidosis research and drug development.  We have held two successful GM1 Research Symposiums, one GM1 Family Meeting, and we are now planning our a virtual meeting.  Our meetings are attended by families from around the globe and help build momentum, community and progress.  Please see the Advancements/Research items for more information with respect to the overall research landscape and also projects we supported/initiated.


Posted by Cure GM1 Foundation