As we find ourselves in unprecedented, uncertain, and challenging times, we hope that you and your loved ones are staying safe. Our thoughts remain constantly on those fighting the medical challenges of COVID-19.
While there is much we do not yet know, we do know this: Our team will not stop moving ahead to fund vital life-saving treatments, advance our innovative model, and lead our mission to cure EB.
#ComeSayHi online by starting your own virtual fundraiser to help us #HealEB. Join one of the teams to get started. Here are some options:
VIRTUAL RACE: Why not add a goal to elevate your social distancing exercise plan? Challenge yourself to run or walk a marathon, half marathon, or 10K, over the course of a week. Post daily updates on your social media channels and encourage your network to donate to your virtual race.
SHOW YOUR SKILLS: Do you have a special talent or skill? Teach a class on social media! Whether it's a yoga session, guitar lesson, or art class, we all have something fun and informative we can teach our friends.
HOST VIRTUAL HAPPY HOUR: After a long day of teleworking, set up a group FaceTime with your friends for happy hour in honor of EBRP! Spend a few minutes explaining why finding a cure is important to you, and ask your friends to make a donation.