Kelly Frambes wrote -
As many of you know, Coen was diagnosed in January of 2016 with juvenile dermatomyositis. JDM causes her immune system to attack her muscles, making them weak. It also attacks her skin, causing painful blistering and rashes. Due to her incredible team at Lurie Childrens Hospital in Chicago, she has made great strides, and the Cure JM Walk will help raise both funds and awareness for this rare disease which affects only 3 children per million each year in the United States. While there is no cure for JDM, with donations given during this event, we can help fund important research so that one day, Coen and other kids with JDM can live full, carefree lives. This is our third year, walking, raising awareness, and raising donations for this amazing cause. We hope you can joiin us in the fight!!
Thanks for supporting Coen and our flight against JDM!
JOIN US IN JUNE 2019 FOR OUR 3rd ANNUAL WALK STRONG TO CURE JM
WHEN: Sunday, June 23, 2019
WHERE: The Hyatt Lodge at McDonald's Campus
2815 Jorie Blvd, Oak Brook, IL 60523
Registration opens at 9:00am
Event & Festivities: 10:00 - 12Noon
This event is free and open to the public.
All proceeds benefit Cure JM Foundation, a non-profit dedicated to finding a cure for Juvenile Myositis, a life-threatening disease which causes the body’s own immune system to attack healthy cells and tissues. It can affect virtually any system of the body, the heart, lungs, skin, muscles, and more. And there is no cure....YET!
But with support from friends and family like you, we’re getting closer to better treatments and a cure.
Our first two Walk Strong to Cure JM - Chicago combined raised over $175,000.
With this continued great support from families and friends we were able to fund research at 20 prestigious research institutions, helping advance JM research at an unprecendented pace!
Your gift now will keep that momentum going. Every donation goes straight to Cure JM, and since inception over 90% of all funds raised go directly to research.
Join the team and fight against JM/JDM today!
Contact firstname.lastname@example.org for more information.