On Sunday, May 5, I will be joining Team CdLS biking the streets of New York City for the 2019 TD Five Boro Bike Tour. This is my second time biking this 40 mile ride. I know it's going to be tough, but it’s nothing in comparison to what people with Cornelia de Lange Syndrome (CdLS), and their families go through. I've worked at the CdLS Foundation for over 7 years and have met so many different families and am happy to participate in this event on their behalf.
Your donation will help to ensure that the services provided to those affected by CdLS and their families will not only remain free, but continue to develop with our growing CdLS community. I hope you will consider supporting me as I ride in support of them.
About the CdLS Foundation
The Cornelia de Lange Syndrome (CdLS) Foundation is a family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives.
To learn even more about CdLS you can visit our website www.CdLSusa.org