On Tuesday, May 5, #GivingTuesdayNow will kick off the CdLS National Awareness Day event where caring individuals around the United States will stand united to celebrate their loved ones.
Passionate volunteers take on the challenge to better the lives of people with the syndrome—many of whom struggle to talk, eat and walk. There is no cure for CdLS, but you can help ensure vital services and programs for families remain by supporting the CdLS Foundation.
CdLS Foundation is a 501(c)(3) nonprofit institution that provides services from compassionate licensed social workers. They assist in connecting individuals with CdLS and their families to experts from various medical, educational and therapeutic specialties who dedicate their invaluable knowledge and resources on a volunteer basis.
CdLS Foundation is a really special place, where professionals work tirelessly to help individuals with CdLS and their families make connections with others who face similar challenges through the biennial family conference, family gatherings, phone calls, and social media.
Funds raised on Awareness Day are critical as the organization is the only one of its kind in the United States that supports the 3,000+ known individuals diagnosed with the rare syndrome and the 10,000+ who remain undiagnosed.
Please dig deep and make a donation – big or small! In light of events happening around the country, many in-person events have been canceled – making it hard for our dedicated community members to share their knowledge and ask for support.
Your generous gift directly impacts these individuals and their families, which is something you can all be proud of accomplishing!