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CdLS Awareness Day Virtual 5k

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CdLS Awareness Day Virtual 5k

Well Hello There!

Our Story begins November 20, 2011 when our daughter Lindsey was born. What we didn't know on that day was Lindsey was born with a rare genetic condition called CdLS Cornelia de Lange Syndrome ((which makes her extra cute with long eyelashes and a small disposition)) it has caused many delays but she and ((we)) are fighters and never give up. I think if I have learned one thing from this, it's that there is so much more to life. We all have become more relaxed and go with the flow kind of people, there has never been a set schedule and truth be told I kind of like it that way!


This year I had BIG plans as an Awareness Coordintor and Regional Coordinator for the Foundation, I was planning to host a 5k and family gathering here in CT. Well well well don't you know that mother nature had bigger plans for the world. So we are doing what we do best and we are going with the flow and instead of giving up and calling it a day we are changing our outlook and getting creative ((I told you we were fighters))


I'd like you to join me (from a distance of course) and run a virtual 5k with from now until May 9, 2020 which is National CdLS Awarness Day. Wear your favorite CdLS shirt or any pruple item and take a photo with #CdLSAwarenessDay so we can virtually follow eachother!


Who: You and everyone you know ( SHARE, SHARE, SHARE)

What: Virtual 5K Walk or Run

When: Now through Saturday, May 9th

Where: Outside or Inside it all counts

How: Join Map My Run and join my challenge today


Fun Fact this year 2020 the CdLS Foundation will be celebrating their 31st year supporting families and raising Awareness, I thought it would be a great idea to show our support by setting my fundraiing goal to $3100!


Show Your Support Today

Run with me

Sponsor someone else to run

Donate




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When
Saturday May 9th

Story

Well Hello There!

Our Story begins November 20, 2011 when our daugter Lindsey was born.  What we didn't know on that day was Lindsey was born with a rare genetic condition called CdLS Cornelia de Lange Syndrome ((which makes her extra cute with long eyelashes and a small disposition)) it has caused many delays but she and ((we)) are fighters and never give up.  I think if I have learned one thing from this, it's that there is so much more to life.  We all have become more relaxed and go with the flow kind of people, there has never been a set schedule and truth be told I kind of like it that way!


This year I had BIG plans as an Awareness Coordintor and Regional Coordinator for the Foundation, I was planning to host a 5k and family gathering here in CT.  Well well well don't you know that mother nature had bigger plans for the world.  So we are doing what we do best and we are going with the flow and instead of giving up and calling it a day we are changing our outlook and getting creative ((I told you we were fighters))  


I'd like you to join me (from a distance of course) and run a virtual 5k with from now until May 9, 2020 which is National CdLS Awarness Day.  Wear your favorite CdLS shirt or any pruple item and take a photo with #CdLSAwarenessDay so we can virtually follow eachother!


Who: You and everyone you know ( SHARE, SHARE, SHARE)

What: Virtual 5K Walk or Run

When: Now through Saturday, May 9th

Where: Outside or Inside it all counts

How: Join Map My Run and join my challenge today


Fun Fact this year 2020 the CdLS Foundation will be celebrating their 31st year supporting families and raising Awareness, I thought it would be a great idea to show our support by setting my fundraiing goal to $3100!


Show Your Support Today

Run with me 

Sponsor someone else to run

Donate 




Posted by ashley fernandez





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