As many of you know Jonathan and I were expecting a baby boy who was due this past February. However, on September 17th 2019 during a routine anatomy scan, it was discovered that the left ventricle of his heart was underdeveloped along with with a 2 vessel cord. Our precious baby boy had been diagnosed with HLHS (Hypoplastic Left Heart Syndrome). During the following weeks of hospital & specialist visits, it was confirmed his condition was accompanied with MS/MA & AA (Mitral Stenosis and Aortic Atresia).
On October 9th I delivered our sweet baby Luca Joseph at 9:35pm. He was born sleeping. I was in labor for 36 hours and during the beginning stages of our grieving process, the nurses were not able to confirm a Caring Cradle would be available. A device that allows a dignified means for parents to spend more time with a baby who has passed and gives an appropriate atmosphere to say goodbye. Fortunately, by the time I delivered, we were blessed that a Caring Cradle was available and this enabled Luca to remain in the room with us and maximize our short time to bond.
We are blessed to have had the time with our angel baby that we did. We will forever treasure the moments we spent with Luca. We do not want a bereaved family to ever miss out on the extremely short and precious time they have. We cannot thank his care team enough for the immense support and compassion throughout our grieving process.
One way to honor our son is to raise money to donate a Caring Cradle in memory of Luca to Brigham and Women’s Hospital. We can't think of a better way to give back and help other families that have to endure this nightmare.
We are happy to be able to share our story and hopefully decrease some of the stigma associated with stillborn/infant loss. Any donation will be greatly appreciated.
Jonathan, Karleen & Lola
Here is a link to Caring Cradle