As may of you know Cal was born with a congenital heart defect that will eventually need repair. He has what is called an ASD ( Atreal Septal Defect) which is essentially a hole in one of the chaimbers of his heart. We organize a team for this walk each year to benifit the Pediatric Congenital Heart Asssociation of Illinois as they do important work supporting families of children with CHD's.
We hope you can join us on the walk or consider donating if you are unable to make it!
Thanks in advance!!
- The Fleming Family
The PCHA-IL chapter is a program of PCHA, aimed at improving the lives of those with congenital heart disease and their families through direct support and education – meeting families where they are.
Through our State Chapters we are able to give knowledge, give a voice and give hope, directly meeting the comprehensive, lifelong needs of patients with congenital heart disease and their families through support, education, advocacy and research programming.
Local activities include:
-Conquering CHD Kits offering critical information and a personal connection for patients with CHD of all ages through individualized care packages
-Online chat networks bringing people with similar experiences together
-In-person peer support offering patients and families encouragement and insight from someone who has walked a similar path
-Social events providing a safe environment to celebrate life and simple joys together
-Physician education improving understanding of congenital heart disease from the patient and family perspective
-Research promotion and participation helping promising developments become reality
-Advocacy activities sharing our stories to improve federal research funding.