My name is Sydney Bartlome, and on January 25, 2018, I had my first seizure. Fast forward a couple days and I was diagnosed with Juvenile Myoclonic Epilepsy after some rigorous EEG testing (as seen in my lovely picture). JME is a genetic form of epilepsy, which is ironic because no one in my family has it (that we know of). As a senior in high school at the time, it was very difficult for me to accept that I would have to alter my entire lifestyle in order to keep myself safe and healty. Since my biggest triggers of seizures are lack of sleep and stress, that made school really really fun! Especially since I am now a college student studying pre-medicine to be a physician. Even knowing my limits, I tend to live life a little precariously. I work late night shifts in the emergency department of a hospital as a scribe. As of May 11, 2019, I am officially 1 year seizure free, and I would like to keep it that way. One of my goals as I go through life is to finally see a cure for epilepsy. As my favorite quote says, "Epilepsy can affect anyone with a brain. Anyone with a brain can affect epilepsy."
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The Seize the Day 5k Run/Walk in St. Louis, MO on Saturday, June 22, 2019 is a family friendly event which raises money to benefit the Epilepsy Foundation of Missouri and Kansas.
We need your help to continue the fight to stop seizures! 1 in 26 people are diagnosed with epilepsy and it is estimated to affect more than 250,000 children and adults in Missouri and Kansas. Please help us win the fight for people in our community that are challenged with seizures.
Register for the event as an individual or create a team to fundraise for the Epilepsy Foundation of Missouri and Kansas. Packet Pick-Up will be on Thursday, June 20th from 12:00 - 7:00 p.m. and Friday, June 21st from 9:00 a.m. - 4:00 p.m. at the EFMK Office at 4406 St. Vincent, St. Louis, MO 63119.
Participants are encouraged to register before June 10th to guarantee your shirt size. A limited number of shirts and sizes will be availalbe at packet pick-up and on race day.
We will have on-site registration available on race morning if you have any additional family or friends who would like to join us. On-site registration will open at 6:30 a.m. on June 22nd.
Thank you for supporting the Epilepsy Foundation of Missouri and Kansas!
