In September 2018, the world lost a beautiful young lady, an inspiration, and the founder of Claire's Place Foundation- Claire Wineland. Although Claire's 21 years were far too short, she truly lived life to the fullest, and her positive disposition and inspirational outlook on life has inspired and touched so many people all over the world- including myself.
Please continue reading/scroll down for more of Claire's story
This November I turn 25 years old, a milestone which I never thought I would reach and which I value so much more now knowing Claire will never have the chance to reach this age herself. In honour of the beautiful soul, whose words still bring me comfort and whose smile still lights up my day even in a photograph, and in the hope of keeping Claire's spirit and her message alive, I am going to take a very cold dip in the sea on November 5th 2018 to raise money for the foundation Claire started, which helps families who are still living through CF. On behalf of myself and the foundation, we would be extremely grateful for any donation that you can make..
More about Claire Wineland:
Claire Wineland lived with cystic fibrosis her entire life. At the age of 13 she founded Claire’s Place Foundation, Inc., a 501c3 non-profit organization providing support to children and families affected by cystic fibrosis (CF). Claire’s foundation was a way for her to give back with hope, strength, joy and make meaning of what she had to go through. Today, her family and the foundation’s board members continue to carry on her legacy providing emotional and financial support to families living with cystic fibrosis.
Claire loved sharing her unique outlook on life and her inspirational model led her to be a TEDx Speaker and speak at leading events across the globe, including PTTOW, the BBYO International Convention (IC) 2016, CES as well as top universities and companies such as Philips and Klick Health. Claire was selected as a member of the Philips “Breathless Choir”. She was a leading face of the campaign that focused on enabling people living with chronic respiratory conditions to fulfill a lifelong dream of singing. The event brought together a group of 18 people in New York for whom breathing is a constant challenge, and documented their journey through a series of films, as they conquered their fears and defied everyone's expectations by undertaking the impossible: learning to sing.
Claire’s image and quotes secured international coverage. At the age of 21, Claire was honored as Glamour Magazine’s 2018 “College Women of the Year” grand prize winner. In her 21 years, she received numerous awards including one of Seventeen Magazine’s “17 Power Teens” of 2016, Fox Teen Choice Awards 2015, Global Genes’ RARE Champion of Hope Award, World of Children Youth Award, the Gloria Barron Prize for Young Heroes and winner of Los Angeles Business Journal’s “Small Nonprofit of the Year,” among others. She was featured on The Dr. Oz Show, CNN, Huffington Post, ABC News, Cosmopolitan, People, Ladies’ Home Journal and more.
https://edition.cnn.com/2018/09/03/health/claire-wineland-obit/index.html
More about Claire's Place Foundation:
Vision
Providing emotional and financial support to families living with cystic fibrosis
Mission
The specific purpose of Claire’s Place Foundation is to provide heart felt help to children and young adults diagnosed with Cystic Fibrosis, as well as their families, for the purpose of improving their quality of life. We hope to accomplish this by heightening awareness and providing education, skills, financial and emotional support.
Values
Prompt processing of grant applications and responses to support requests; Wise stewardship of resources; Vetting trusted avenues in the community in order to raise awareness about cystic fibrosis on a national and global level.
How We Fulfill Our Mission
Making grants to support families living with cystic fibrosis, through the generosity of our donors, throughout the United States. Connecting families who are isolated and in need of support to our group of “Support Families” through email, Skype or telephone. Educating the community by engaging in public speaking, newsletters, press and media related to cystic fibrosis. Encouraging individuals, families and businesses to partner with us to fulfill our charitable goals. Attracting and enlisting an active, qualified and professional board of directors who are involved in all of the business practices and assist in fulfilling our mission.
Claire’s Place Foundation, Inc. is a 501c3 non-profit organization providing support to children and families affected by cystic fibrosis (CF). Claire’s Place Foundation is named in honor of Claire Wineland, now a teenager, who has been living with CF her entire life. The foundation provides grants to families affected by CF, offering both emotional and financial support. A young author of bestseller “Every Breath I Take, Surviving andThriving with Cystic Fibrosis,” Claire’s unique inspirational model for people living with this disease has led her to be a TEDx Speaker and receive multiple awards including FoxTeen Choice Awards 2015, Gloria Barron Prize for Young Heroes, Southbay Magazine’s“Top 10 South Bay Teen”, Looking Beyond LA’s “Soaring Spirit Award,” and winner of Los Angeles Business Journal’s “Small Nonprofit of the Year.” She has been featured on Inside Edition, The Dr. Oz Show, CNN, Huffington Post, ABC News, Cosmopolitan Magazine, People Magazine, Ladies’ Home Journal and many more. Claire’s Place Foundation is a way for Claire to give back with hope, strength, and joy and make meaning of what she has had to go through.
