PURE LOVE. PURE JOY. PURE GRACE.
She will put an instant smile on your face the second you meet her and will melt you with her kisses, her hugs or her laugh. This is our Amazing Grace.
Grace’s story is like no other. My wife Rebecca and I were blessed to have our third daughter; Grace Antonia Caruso on 8/31/2013. Shortly after birth, our lives were turned upside down as my wife and I learned that Grace had experienced a hypoxic ischemic brain injury at some time during the pregnancy and for a short time had a depletion of oxygen to her brain. This resulted in Grace having significant brain damage to both cortexes of her brain.
2013 was a blur. Weekly appointments to Boston Children’s Hospital, Newton Wellesley Hospital, pediatricians, pulmonologists, neurologists, visiting nurses, home oxygen tank deliveries and early intervention therapies (PT, OT, speech).
Her fight grew stronger each month. Her heart and lung issues resolved and she no longer needed oxygen. She didn’t just survive. She conquered. She became “Amazing Grace.”
Her biggest cheering section; her family, poured all our love and energy into our miracle child. Her fight became our fight.
Amazing Grace’s hard work and determination helped her conquer eye surgery, learning to walk, hear and see. She continues to conquer mountains. In 2018, Grace learned to write “mom,” swim independently and started kindergarten with her friends. Grace is working VERY hard to learn to talk with the help of her AMAZING TEAM of teachers and speech therapists at school, Boston Children’s Hospital, private therapy and use of an AAC device.
Speaking of teams, the Beth Israel Deaconess Medical Center NICU and Boston Children’s Hospital Neurology Department utilized medically advanced protocols (including hypothermic treatment) to stop Grace’s seizures and more brain/organ damage after birth. We believe the BIDMC NICU technology and quick-thinking team of doctors saved Amazing Grace’s life and we will forever be indebted to BIDMC. For this reason, I am running for the 6th time on the BIDMC Team. This will be my 22nd participation in the Boston Marathon.
All funds raised will help the BIDMC NICU be able to take care of other families and babies in need at their most precious and critical times. The department of neonatology provides medical oversight for all infants born at Beth Israel Deaconess Medical Center. The department also provides and coordinates medical care including high frequency ventilation and a full range of pediatric subspecialty services for high-risk newborns in the neonatal intensive and intermediate care units. More information of the NICU is listed below.
If you would like to donate, please click on the “Donate Now” button above.
BIDMC is a 501(c)3 nonprofit organization, and the tax ID number (TIN) is 04-2103881
If you wish to donate by check, please follow instructions below:
1. Make check payable to: Beth Israel Deaconess Medical Center or BIDMC and then write in the Memo field: Team Amazing Grace-2020 Boston Marathon.
2. Mail check to:
John Caruso, Jr.
5 Brandon Lane
Holliston, MA 01746
In addition, please look into if your company has a Matching Program.
Thank you in advance for your support and generosity. We can’t begin to tell you how much it means to us.
Sincerely, John, Rebecca, Deanna, Emma and especially Amazing Grace.
The Klarman Family Neonatal lntensive Care Unit (NICU)
Each year, approximately one in eight babies in the United States is born prematurely, which has a profound impact on newborns and their families. These vulnerable babies often present with complex medical needs, ranging from severe breathing trouble to underdeveloped organs, and require specialized care to give them a healthy start. The NICU provides state-of-the-art, family-centered care for about 1,000 high-risk newborns and their families each year.