My name is Beau Ehlers, I am 30 years old and I have Spina Bifida. I was born in Colorado, moved to Nebraska for most of my life, and moved back to Colorado one year ago seeking personal and professional changes along with better healthcare. Being born with a lipomyelomeningocele in the L4-L5 region, I lived the first 20 years of my life relatively "normal" having only two surgeries: one at birth to repair the congenital defect and one at the age of 15, my first spinal cord detethering. When I was around the age of 21 I began to experience what is known as parathesias, aka "pins and needles" sensations that would come and go every few months. Flash forward to 30 years of age and now I feel like I do not remember a time in my life without pain. Coupled with the struggles of a neurogenic bladder (having to straight catheterize myself each time I use the restroom), having zero feeling in my lower legs and feet, and having a total atrophy of my lower extremeties life has been anything but normal. Recently, we reached out to the SBA National Chapter for volunteer opportunities and learned about more than we could have imagined, including that I am a member of the "20s club" for SB where individuals burdened with this disability live the first 20 years or so of their lives virtually unscathed. Then when age 20 or so rolls around, SB begins to rear its ugly head. My goals in creating this page are to create better awareness for SB as well as to show people how amazing my "inner circle" of family and friends are and that I could truly not do life without them. I most sincerely appreciate any donation or other assistance you are able to provide with 100% of the proceeds benefitting the SBA and those affect by SB. I appreciate you stopping by, if anything, to learn a little bit more about my story and what SB can look like.