Bear was diagnosed with Timothy Syndrome at the age of 8 months. It was devastating to receive news that there was an average life expectancy of 2.5 years and no cure. The Lord has, in His steadfast love, been our refuge in the darkest of days. Needless to say, Bear turning 3 next month is SO exciting for us!!! Since diagnosis, through the work of a very small team, the average life expectancy has increased to 7.5 years. The SADS conference we attended in 2017/Toronto and 2018/Michigan, has a tremendous impact on helping these kids. It not only connects us mom's to share important details on caring for our children, but also is a crucial part of recruiting medical and scientific professionals to help. Sticking with tradition, we would like to use Bear's birthday to ask people to help. Each donation will go directly to the Timothy Syndrome Alliance, which will get TS families (including us) around the globe to the 2019 SADS conference.
"Oh give thanks to the LORD; call upon his name; make known his deeds among the peoples! Sing to him, sing praises to him; tell of all his wondrous works! Glory in his holy name; let the hearts of those who seek the LORD rejoice! Seek the LORD and his strength; seek his presence continually! Remember the wondrous works that he has done, his miracles and the judgements he uttered," 1 Chronicles 16:8-12