January 8,2018 started out as a normal Monday morning. But as I watched my three children board the school bus, I was completely unaware that my daughter Paige would never be coming home. A first phone call from the school nurse – “Paige is here, she’s crying, her head hurts, and she vomited” – was followed up moments later with a second more urgent phone call – “Paige is unresponsive…we have an ambulance coming.” Paige was rushed to the hospital where, despite desperate efforts to save her life, she died suddenly at just 6 years of age. Unknown to anyone, Paige had a brain arteriovenous malformation (AVM) – a tangle of abnormal blood vessels connecting arteries and veins to the brain - which ruptured causing bleeding in her brain. The doctors told us she was born with this condition. Then came the words that will haunt me forever - “if you had known Paige had an AVM, it could have been treated and Paige would likely still be here today.”
The Paige Elizabeth Keely Foundation is a nonprofit 501c3 (EIN-84-5024812) organization created in Paige’s honor.
-Raising awareness of brain Arteriovenous Malformations
-Educating communities about this treatable condition
-Establishing early detection screening programs