We are so excited for this years Spina Bifida Walk N Roll! Ari has been asking aboit it for over a year since we were not able to participate last year.
As many of you already know we found out at 18 weeks that Ari was going to be born with Spina Bifida. Steven and I along with our familes were so very scared because we had no idea what to expect. Well at 28 weeks our little tiny 1lb 2oz fighting machine Ari Scott Kinson was born at 3:26 on December 26, 2012.
We spent 5 months in the NICU between University Hopsital and Childrens of Colorado. We were incredibly blessed to have the wonderul care that we did during our stay! Our doctors and nurses guided us along the way and became angels on earth to our family.
Ari‘s lesion is lower on his spine S1 so manily his bowels, bladder and legs have been our areas of concern. He also was born with clubbed feet . We are very blessed that not only can he walk with AFO’s he can RUN!
We have a lot of really great days but we also have some more challenging days as well. Life has given us a mircle boy and we are blessed to watch him grow into this amazing young boy.
We try our best each year to educate about SB as well as raise money to possibly one day help find a cure for all! Please if you can donate anything yo our amazing team we would greatly appreciate it.