This page was created before I could make an official team page. All goes same place. Please use this link for furture donations.
What if you could not ... SEE, HEAR, BREATHE, WALK ?
Chicago Marathon: October 13, 2019
Little Rock Marathon: February 29 - March 1, 2020
Boston Marathon: April 20, 2020
When I was 7 years old, I was diagnosed with Neurofibromatosis Type 2 (NF2).
I've had surgeries for tumors in my brain, spine, ears, leg, eyes, and most recently my throat. When I was 19 I became totally deaf, but I am fortunate to do very well with my Auditory Brainstem Implant.
On March 8, 2019, I was admitted for the scheduled surgery to remove "a mass" that was pushing on my vocal cord. it had been there for a long time, but only in the past year had begun to cause noticable symptoms. As planned, I had that surgery, was told it went very well, and I was monitored for 1 night at the hospital, then discharged the next day, on March 9th. However, the next couple days, I had a few scary moments of struggling to breathe.
Post-op swelling combined with remainder of the tumor SHIFTED so far that it basically fell into and almost completely blocked my airway!!
Unexpected complications had arose, that quickly led to me waking up about 4am - CHOKING! My husband gave me several rescue breaths, while calling 911 (Thank God, he was a lifegaurd as a teenager, but he had never needed to use that skill!), a return by ambulance, to local E.R. the first time I stopped breathing, transfer back to Boston, basically re-admitted and a total 2 week hospitalization, due to the 3 cm schwannoma pushing on my vocal cord, Two major throat surgeries, and an emergency surgery midnight tracheotomy, after the 2nd time I stopped breathing. The last throat surgery was the most risky!
Less than 2 months after leaving the hospital, I could run eight miles!
March 18, The day before the most risky surgery, while I was breathing through a tract, and writing on a notepad to communicate, after yet another endoscopy, I told my surgeon that I will run the 2020 Boston Marathon, with Team Mass Eye and Ear. He chuckled, smiled, and said "Okay, we'll see about that." (I was scared, but determined!)
I plan to run Boston Marathon 2020 with Mass Eye and Ear Team. www.masseyeandear.org
Having NF2 has been a battle throughout my life. I am fortunate to proudly be not only a survivor, but I'd say I'm more than mostly healthy.... THANKS to having some of the best doctors in the country, at MEEI, MGH, and HEi.
Every dollar counts ....
$1 per a mile is $26.20
$5 per a mile is $131
$10 per a mile is $262
... and so on