Anhthy Nguyen wrote -
After many years of numerous blood tests and going to different medical specialists, I was finally diagnosed with an autoimmune disease called Juvenile Dermatomyositis in 2011. I’ve been dealing with this disease for most of my life now, and it’s something that has impacted me greatly. Throughout my life, this disease has impacted me both positively and negatively. When I was 12, it unfortunately caused me to question my self-worth due to a medication that had a side effect of a large amount of weight gain. I felt out of place during this time because I didn’t feel like myself in my own body.
It took me awhile to believe that I was not my disease and that it did not define me.
Therefore, I became more motivated to better myself and excel in my academics. If I could not fix my health, then I could improve myself by doing well in school. Although I had to miss school throughout the years due to many doctor appointments and transfusions, I continued to do my best academically. I proceeded to balance school, sports, and extracurriculars successfully. School was something that I came to rely on to get my mind off of my disease and the negativity that came with it. I was able to pour my emotions into my schoolwork and later graduate as the Class of 2018 Valedictorian! I am currently attending UCLA, and my goal now is to become an educator! :-)
There is currently no cure for this disease but I would appreciate it if you could donate whatever you can to this organization, as they are searching for a cure and also better treatments to help us fight this disease.
If you would like to participate in this walk, please let me know! I would love for each and every one of you to come join me as this will be my first walk as well. Information is below!
When: May 4, 2019
Where: Ramona Park in San Ramon
Time: Registration opens at 9:00 a.m.
Walk and festivities 10a.m. - Noon
Learn more about Cure JM: WWW.CUREJM.ORG