I started donating my money and time to Cure JM about 11 years ago, after learning my friend’s son, Mason, had this terrible disease. Cure JM is the only organization focused on JM research.
Juvenile Myositis is a rare disease that causes a child’s own immune system to attack healthy cells and tissues, which can cause pain, weakness, inability to walk, disfigurement, and can be life-threatening. JM can affect virtually any system of the body, the heart, lungs, skin, muscles, and more. And there is no cure…YET.
Sadly, Mason lost his battle to JM at the age of 10. Heart breaking. In memory and honor of Mason, and for all of the other children with JM, I’ve continued to give my time and donate money to Cure JM. I’ve now met many families and kids with JM and it breaks my heart daily to see all they must endure. My goal is that no other child ever suffers with Juvenile Myositis.
We have a fundraiser and family fun event on Saturday, Feb. 23rd. Join in the FUN and help us find a cure.
Please come and invite your family, friends and colleagues. The event is FREE and open to the public. We’ll have bounce houses, yard games, food trucks, DJ, snow cones and more!
· Saturday February 23rd, 2019 10:00am - Noon Registration opens at 9:00am
· Griffith Park Pettigrew area of Crystral Springs Picnic Area 4730 Crystal Springs Drive Los Angeles,CA 90027
Being a rare disease, where there are no FDA approved drugs, we don’t get sponsors from the big pharmaceuticals. In fact, our few sponsors tend to be companies where the families of JM kids work. We depend on grassroots fundraising to raise money and fund critical JM research. Over 90% of revenues go directly to research to help children suffering with Juvenile Myositis.
Your support now gives HOPE. #CUREJM